Quality of life for families of children with intellectual disabilities

Majda Schmidt (Author), Ksenija Seršen (Author)

Abstract

The main part of the article presents the results of a recent empirical study about the quality of life for families in Slovenia that have a child with intellectual disabilities and other developmental disabilities. Using the FQOLS-2006, we analysed nine quality of life domains (Health, Financial Well-Being, Family Relationships, Support from Others, Support Services, Influence of Values, Careers, Leisure and Community Interaction) from the perspective of six measurement dimensions. The study also examines the differences among the measurement dimensions in the nine domains. The sample consisted of 44 families. We used descriptive statistics and inferential statistics (Friedman test). The Family Relationships domain had the highest average rating of all measured domains regarding the quality of family life. The results in the domain of Support from Others are not encouraging, in particular the domain of Support from Services. Families require powerful support programs from qualified professional teams as well as societal and political attention.

Keywords

family quality of life;intellectual disabilities;quality of life domains;quality of life dimensions;

Data

Language:	English
Year of publishing:	2017
Typology:	1.01 - Original Scientific Article
Organization:	UM PEF - Faculty of Education
UDC:	159.922.76-056.313
COBISS:	23022344
ISSN:	1855-4431
Parent publication:	Revija za elementarno izobraževanje
Views:	1720
Downloads:	132
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Metadata:

Other data

Secondary language:	Slovenian
Secondary title:	Družine z otroki z motnjami v duševnem razvoju in kakovost življenja
Secondary abstract:	V osrednjem delu prispevka predstavljamo najnovejše rezultate raziskave o kakovosti življenja slovenskih družin z otroki z motnjami v duševnem razvoju in drugimi razvojnimi motnjami. Podatke smo zbrali s pomočjo mednarodnega vprašalnika FQOLS - 2006. Z vidika šestih dimenzij smo analizirali devet področij kakovosti družinskega življenja (zdravje; finančno stanje; družinski odnosi; podpora drugih oseb; podpora služb; vpliv vrednot; poklic in priprava za poklic; prosti čas in rekreacija; interakcija s skupnostjo). Preučevali smo tudi razlike znotraj dimenzij na področjih kakovosti življenja. Vzorec je zajemal 44 družin. V raziskavi smo uporabili deskriptivno in inferenčno statistiko (Friedmanov test). Med področji kakovosti življenja so starši z najvišjimi povprečji z vidika šestih dimenzij ocenili področje družinski odnosi. Skrb vzbujajo rezultati na področju podpora drugih oseb, še zlasti pa na področju podpora služb. Družine potrebujejo pomoč usposobljenih strokovnih timov in vključenost v intenzivne podporne programe ter tudi ustrezno družbeno in politično pozornost.
Secondary keywords:	kakovost življenja;motnje v duševnem razvoju;področja kakovosti življenja;dimenzije kakovosti življenja;ne zaključna dela;Otroci z motnjami v duševnem razvoju;
URN:	URN:NBN:SI
Type (COBISS):	Article
Pages:	str. 5-17
Volume:	ǂLetn. ǂ10
Issue:	ǂšt. ǂ1
Chronology:	mar. 2017
ID:	10866462