Achieving thoracic oncology data collection in Europe

ǂa ǂprecursor study in 35 countries

Anna Rich (Author), David R. Baldwin (Author), Inmaculada Alfageme (Author), Paul Beckett (Author), Thierry Berghmans (Author), Stephen Brincat (Author), Otto Burghuber (Author), Alexandru Corlateanu (Author), Tanja Čufer (Author), Ronald Damhuis (Author)

Abstract

Background: A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. Methods: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. Results: Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia- Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. Conclusion: Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a welldesigned dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.

Keywords

lung cancer;studies;Pljučne novotvorbe;Epidemiologija;Evropa;

Data

Language:	English
Year of publishing:	2018
Typology:	1.01 - Original Scientific Article
Publisher:	Springer Nature
UDC:	616-006
COBISS:	2048431473
ISSN:	1471-2407
Views:	733
Downloads:	299
Average score:	0 (0 votes)
Metadata:

Other data

Secondary keywords:	pljučni rak;raziskave;Lung neoplasms;Epidemiology;Europe;
Source comment:	Soavtorji: David Baldwin, Inmaculada Alfageme, Paul Beckett, Thierry Berghmans, Stephen Brincat, Otto Burghuber, Alexandru Corlateanu, Tanja Cufer, Ronald Damhuis, Edvardas Danila, Joanna Domagala-Kulawik, Stefano Elia, Mina Gaga, Tuncay Goksel, Bogdan Grigoriu, Gunnar Hillerdal, Rudolf Maria Huber, Erik Jakobsen, Steinn Jonsson, Dragana Jovanovic, Elena Kavcova, Assia Konsoulova, Tanel Laisaar, Riitta Makitaro, Bakir Mehic, Robert Milroy, Judit Moldvay, Ross Morgan, Milda Nanushi, Marianne Paesmans, Paul Martin Putora, Miroslav Samarzija, Arnaud Scherpereel, Marc Schlesser, Jean-Paul Sculier, Jana Skrickova, Renato Sotto-Mayor, Trond-Eirik Strand, Paul Van Schil in Torsten-Gerriet Blum; Nasl. z nasl. zaslona; Opis vira z dne 13. 12. 2018; Članek št. 1144;
Pages:	str. 1-12
Issue:	ǂ[Vol.] ǂ18
Chronology:	2018
DOI:	10.1186/s12885-018-5009-y
ID:	12149311