(diplomsko delo)
Sabina Vreš (Author), Nataša Mlinar Reljić (Mentor), Barbara Kegl (Co-mentor)

Abstract

Življenje z otrokom, ki ima motnjo avtističnega spektra, zahteva veliko potrpljenja in razumevanja, zato je naš namen je predstaviti doživljanje spiritualnosti staršev otrok z motnjo avtističnega spektra. Uporabili smo deskriptivno metoda dela s pregledom literature v mednarodnih podatkovnih bazah PubMed, SAGE Journals in Science Direct. Strokovno in znanstveno literaturo smo sistematično pregledali, naredili sintezo pridobljenih virov in uporabili metodo tematske analize. Glavna tema zaključnega dela je bila doživljanje spiritualnosti staršev otrok z motnjo avtističnega spektra, ki jo je oblikovalo več različnih podtem, in sicer: občutki, čustva, potreba po duhovnem razvoju, religiozne potrebe, potrebe po povezanosti družine in iskanju smisla življenja. Ugotovili smo, da starši različno doživljajo spiritualnost, da pri zagotavljanju svojih spiritualnih potreb uporabljajo različne pristope ter da je uporaba spiritualne oskrbe v zdravstvu omejena. Starši se različno odzivajo na motnjo avtističnega spektra svojih otrok. Iščejo odgovore, zakaj se je ravno njim rodil tak otrok, sprašujejo se, če je to božja kazen ali gre za obsedenost otroka s črno magijo. Starši teh otrok izkazujejo potrebo po podpori in s pomočjo le-te začnejo sprejemati otroka. Iz pregleda literature smo ugotovili, da so bile na področju spiritualnih potreb staršev otrok z motnjo avtističnega spektra narejene omejene raziskave. Treba bi bilo raziskati, kako bi se v proces zdravstvene nege vključila spiritualna oskrba in nudenje spiritualnih potreb.

Keywords

spiritualne potrebe;spektroavtistične motnje;otroci;družina;

Data

Language: Slovenian
Year of publishing:
Typology: 2.11 - Undergraduate Thesis
Organization: UM FZV - Faculty of Health Sciences
Publisher: [S. Vreš]
UDC: 616.896-053.2(043.2)
COBISS: 99541763 Link will open in a new window
Views: 114
Downloads: 31
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Other data

Secondary language: English
Secondary title: Experiencing spirituality in parents of children with autism spectrum disorder
Secondary abstract: Living with a child with an autism spectrum disorder requires a lot of patience and understanding, so our purpose is to present the experience of the spirituality of parents of children with an autism spectrum disorder. We used descriptive work with literature review in international database methods PubMed, SAGE Journals and Science Direct. We systematically reviewed the professional and scientific literature, made a synthesis of the obtained sources and used the method of thematic analysis. Living with a child with an autism spectrum disorder requires a lot of patience and understanding, so our purpose is to present the experience of the spirituality of parents of children with an autism spectrum disorder. Parents respond differently to their children’s autism spectrum disorder. They are looking for answers as to why such a child was born to them, they wonder if this is God's punishment or if it is a child's obsession with black magic. The parents of these children show the need for support and with the help of it they begin to accept the child. From a review of the literature, we found that limited research has been done on the spiritual needs of parents of children with autism spectrum disorder. It would be necessary to explore how spiritual care and the provision of spiritual needs would be included in the nursing process.
Secondary keywords: spiritual needs;spectroautistic disorders;children;family;
Type (COBISS): Bachelor thesis/paper
Thesis comment: Univ. v Mariboru, Fak. za zdravstvene vede
Pages: IV, 33 f., 1 f. pril.
ID: 13993499