Podporne intervencije družinskih članov pacienta s Parkinsonovo boleznijo

diplomsko delo

Matija Škrlec (Author), Dominika Jakl (Mentor), Lucija Gosak (Co-mentor)

Abstract

Uvod: Parkinsonova bolezen je neozdravljiva, nevrodegenerativna bolezen, ki ima zelo raznoliko klinično sliko. Posledica bolezni je okrnjena fizična in kognitivna funkcija pacientov, kar zahteva veliko pomoči tudi od družinskih članov svojcev s Parkinsonovo boleznijo. Namen zaključnega dela je bil raziskati, katere intervencije se izvajajo za podporo družinskim članom pacienta s Parkinsonovo boleznijo. Metode: Pri pisanju smo uporabili opisno ali deskriptivno metodo dela. Raziskave so bile pridobljene iz podatkovnih baz CINAHL, PubMed, Cochrane Library in ScienceDirect. Uporabili smo metodi analize ter sinteze. Raziskave smo razvrstili na ravni, glede na izbrano hierarhijo dokazov. Rezultati: V končno analizo je bilo vključenih šest raziskav, ki so bile narativni pregled literature (n = 2), kvalitativne (n = 2), kvantitativne (n = 2), ali raziskave mešanih metod (n = 1). Družinskim članom so najpogosteje nudene intervencije izobraževanja, za sprejemanje vloge skrbnika, nudenje oziroma svetovanje duhovne oziroma duhovniške podpore v okviru paliativne oskrbe, ter socialna podpora oziroma izmenjava izkušenj med družinskimi člani v okviru psihoizobraževalnega programa. Razprava in zaključek: Rezultati kažejo, da obstajajo koristne intervencije, kot so izobraževalni programi za družinske člane, vendar pa ne obstaja veliko raziskav, ki bi točno opredelile, kako bi naj bila izobraževanja strukturirana.

Keywords

Parkinsonova bolezen;družinski člani;podporne intervencije;

Data

Language:	Slovenian
Year of publishing:	2024
Typology:	2.11 - Undergraduate Thesis
Organization:	UM FZV - Faculty of Health Sciences
Publisher:	[M. Škrlec]
UDC:	614.253.89:616.858(043.2)
COBISS:	193231363
Views:	38
Downloads:	5
Average score:	0 (0 votes)
Metadata:

Other data

Secondary language:	English
Secondary title:	Support interventions of family members for patients with Parkinson´s disease
Secondary abstract:	Introduction: Parkinson's disease is an incurable, neurodegenerative disease with a very diverse clinical picture. The disease results in impaired physical and cognitive function, which requires a lot of help from family members who are connected to the Parkinson's patient. The aim of this thesis is to investigate which interventions are implemented to support the family members of the patient with Parkinson's disease. Methods: We will use the descriptive or descriptive method of writing. Research was retrieved from CINAHL, PubMed, Cochrane Library and ScienceDirect databases. We also used the analysis method and the synthesis method to link the findings. We classified the research into levels according to the chosen hierarchy of evidence. Results: The 6 studies included in the final analysis were narrative literature reviews (n = 2), qualitative (n = 2), quantitative (n = 2), or mixed methods research (n = 1). We identified interventions that can be offered to family members, most commonly education and thus acceptance of the role of caregiver, spiritual support or counselling in the context of palliative care, and social support or sharing of experiences between family members in the context of a psychoeducational programme. Discussion and conclusion: The results suggest that there are useful interventions, such as educational or training programmes for family members, but there is not much research that defines exactly how these training courses should be structured.
Secondary keywords:	Parkinson`s disease;family members;support interventions;
Type (COBISS):	Bachelor thesis/paper
Thesis comment:	Univ. v Mariboru, Fak. za zdravstvene vede
Pages:	1 spletni vir (1 datoteka PDF (IX, 28 str.))
ID:	22947842