Neonatalna paliativna oskrba

diplomsko delo

Sabina Ozebek (Author), Tina Gogova (Reviewer), Renata Vettorazzi (Mentor)

Abstract

Uvod: Cilj paliativne oskrbe je izboljšanje kakovosti življenja pacienta in obravnava fizioloških, psiholoških, sociokulturnih in duhovnih potreb. Pediatrična paliativna oskrba je prilagojena glede na starost in potrebe posameznega otroka, pomembno pa je tudi upoštevanje odločitev in želja staršev. Med najbolj ranljivimi so novorojenčki, ki so povsem odvisni od staršev in ne morejo izraziti svojih potreb in počutja. Namen: V diplomskem delu smo želeli raziskati neonatalno paliativno oskrbo in odgovoriti na raziskovalna vprašanja. Metode dela: Za raziskovanje smo uporabili deskriptivno metodo dela s pregledom strokovne literature. Literaturo smo iskali v podatkovnih bazah Cinahl Ultimate in Medline ter v iskalniku PubMed z vnaprej določenim iskalnim nizom. Rezultati: V pregled literature smo vključili 19 enot tujih strokovnih člankov. Rezultati kažejo na pomembnost paliativne oskrbe novorojenčka za dostojno smrt. Narejenih je veliko raziskav, ki prikažejo različne načine in metode obravnave simptomov, ki jih doživlja novorojenček. Svetuje se pretežna uporaba nefarmakoloških metod, kot so kenguru nega in dojenje ter uporaba zdravil za lajšanje bolečine. Raziskave kažejo na to, da učinkovito paliativno oskrbo preprečuje premalo možnosti ustrezne izobrazbe zdravstvenega osebja in hkrati pomanjkanje smernic in protokolov za izvajanje neonatalne paliativne oskrbe. Vloga zdravstvene nege je v rezultatih pomanjkljivo zastopana. Pomembnost le-te pa se kaže v nenehni prisotnosti medicinske sestre ob novorojenčku in družini ter ocenjevanju in izpolnjevanju individualnih potreb. Razprava in zaključek: Ugotovili smo, da je paliativna oskrba pomembna za novorojenčka in njegovo družino. Obravnava simptomov v neonatalni paliativni oskrbi poteka s pomočjo različnih metod, ki izboljšujejo kakovost življenja novorojenčka in hkrati omogočajo povezovanje s starši ter ustvarjanje spominov. Pri svojem delu se zdravstveni delavci srečujejo z različnimi omejitvami, ki preprečujejo učinkovito oskrbo. Potrebne bi bile dodatne raziskave za področje vloge zdravstvene nege v neonatalni paliativni oskrbi.

Keywords

diplomska dela;zdravstvena nega;neonatalna paliativna oskrba;novorojenčki;intervencije;vloga zdravstvene nege;dostojno umiranje;

Data

Language:	Slovenian
Year of publishing:	2024
Typology:	2.11 - Undergraduate Thesis
Organization:	UL ZF - University College of Health Studies
Publisher:	[S. Ozebek]
UDC:	616-083
COBISS:	201293059
Views:	69
Downloads:	7
Average score:	0 (0 votes)
Metadata:

Other data

Secondary language:	English
Secondary title:	Neonatal palliative care
Secondary abstract:	Introduction: The aim of palliative care is to improve the quality of patients' lives and consideration of their physiological, psychological, sociocultural, and spiritual needs. Pediatric palliative care depends on the age and needs of each individual child, regarding decisions and wishes of parents. Neonates are among the most vulnerable and entirely dependent on their parents and with no ability to express their needs and feelings Purpose: In diploma work we wanted to research neonatal palliative care and to address the exploratory issues. Methods: In the research, a descriptive method with a review of professional literature was used. The literature was found in the Cinahl Ultimate and Medline databases and in the PubMed search engine using a predefined search string. Results: The literature review consisted of 19 foreign professional articles. The results have shown the importance of palliative care of newborns to ensure dignified process of dying. A lot of studies have been done in order to show various ways and methods of treating the symptoms experienced by a neonate. The usage of non-pharmacological methods such as kangaroo care and breastfeeding is advised, as well as application of pain relief medications. The research has shown that effective palliative care is inadequate because of the insufficiently educated medical personnel and a lack of guidelines and protocols in performing neonatal palliative care. The role of nursing care is insufficiently represented in the results. It is demonstrated in the constant attendance of the nurse with the newborn and its family and also in assessing and considering individual needs. Discussion and conclusion: It has been proved that palliative care is important for the newborn child and its family. Treating the symptoms in neonatal palliative care is performed using various methods, which improve the quality of life of a newborn child and enables making bonds with parents and creating memories. Medical personnel have difficulties with various limitations in their work that prevent efficient care. Additional research is needed in the field of nursing care in neonatal palliative care.
Secondary keywords:	diploma theses;nursing care;neonatal palliative care;neonates;interventions;role of nursing care;dignified dying;
Type (COBISS):	Bachelor thesis/paper
Study programme:	0
Thesis comment:	Univ. v Ljubljani, Zdravstvena fak., Oddelek za zdravstveno nego
Pages:	32 str.
ID:	24530602