diplomsko delo
Maja Šimek (Author), Špela Mihevc (Reviewer), Katarina Galof (Mentor)

Abstract

Uvod: Amiotrofična lateralna skleroza je nevrodegenerativna bolezen, pri kateri gre za propad zgornjih in spodnjih motoričnih nevronov, kar se kaže kot mišična atrofija, upad mišične moči, težave z govorom, požiranjem in dihanjem. Najpogostejši vzrok smrti je odpoved dihalnih mišic in posledično zadušitev. Ker še za bolezen niso odkrili zdravila je zelo pomembno simptomatsko zdravljenje in strmenje k omogočanju izboljšanja kakovosti življenja uporabnikov. Delovni terapevti, so pomembni člani multidisciplinarnega tima. Namen: Je bil zbrati podatke na temo kakovosti življenja oseb z amiotrofično lateralno sklerozo in s sistematičnim pregledom literature ugotoviti, s katerimi delovno terapevtskimi intervencijami lahko izboljšamo kakovost življenja uporabnikov, obolelih z amiotrofično lateralno sklerozo. Metode dela: Narejen je bil sistematični pregled literature, iskane s ključnimi besedami v angleškem jeziku, ki so bile povezane z Boolovima operaterjema AND in OR in različnimi filtri besedila. Iskanje literature je potekalo v mesecu marcu 2025 v treh podatkovnih bazah: EBSCOhost, Web of Science in Pub Med. Rezultati: Sedmim člankom je bila narejena ocena kakovosti člankov po smernicah Joanna Briggs Institute, deskriptivna in tematska analiza. V tematski analizi smo oblikovali štiri glavne teme: medicinski pripomočki, prilagajanje okolja, telesna aktivnost in varčevanje z energijo ter paliativna oskrba. Razprava in zaključek: Amiotrofična lateralna skleroza je hitro napredujoča bolezen, pri kateri se uporabniki srečujejo s številnimi težavami, ki se kažejo pri izvajanju vsakodnevnih aktivnosti in okupacij. Delovni terapevt v sodelovanju z multidisciplinarnim timom, s svetovanjem uporabe medicinskih pripomočkov, z izvedbo na uporabnika usmerjenih intervencij, prilagoditev ožjega okolja, tehnik varčevanja z energijo in primerne telesne aktivnosti pomembno vpliva na vzpostavljanje, izboljšanje in vzdrževanje kakovosti življenja oseb z amiotrofično lateralno sklerozo v skladu z napredovanjem bolezni.

Keywords

diplomska dela;delovna terapija;bolezen motoričnega nevrona;kakovost življenja;delovno terapevtska obravnava;medicinski pripomočki;paliativna oskrba;tehnike varčevanja z energijo;

Data

Language: Slovenian
Year of publishing:
Typology: 2.11 - Undergraduate Thesis
Organization: UL ZF - University College of Health Studies
Publisher: [M. Šimek]
UDC: 615.851
COBISS: 247445763 Link will open in a new window
Views: 89
Downloads: 18
Average score: 0 (0 votes)
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Other data

Secondary language: English
Secondary title: Occupational therapy for patients with amyotrophic lateral sclerosis
Secondary abstract: Introduction: Amyotrophic lateral sclerosis is a neurodegenerative disease characterized by the degeneration of upper and lower motor neurons, resulting in muscle atrophy, decreased muscle strength, difficulties in speech, swallowing and breathing. The most common cause of death is respiratory muscle failure, leading to suffocation. Since the cure for the disease has not yet been found, it is crucial to focus on symptomatic treatment and strive to improve quality of life. Occupational therapists, are important members of a multidisciplinary tim. Purpose: The aim of this study was to collect data on the quality of life of individuals with amyotrophic lateral sclerosis and, through a systematic literature review, determine which occupational therapy interventions can improve their quality of life. Methods: A systematic literature review was conducted using English keywords combined with Boolean operators AND and OR and various text filters. The literature search was performed in March 2025 across three databases: EBSCOhost, Web of Science, and PubMed. Results: In seven artickles we evaluated the quality of the selected articles using the Joanna Briggs Institute appraisal tools. A descriptive and thematic analysis was conducted, which led to the identification of four main themes: medical devices, environmental adaptations, physical activity and energy conservation, and palliative care. Discussion and Conclusion: Amyotrophic lateral sclerosis is a rapidly progressing disease that presents numerous challenges in performing daily activities and occupations. Occupational therapists, in collaboration with multidisciplinary teams, play a crucial role in enhancing patients quality of life by advising the use of medical aids, with implementation of user oriented interventions, adaptation of living enviroment, and promoting energy conservation strategies tailored to disease progression.
Secondary keywords: diploma theses;occupational therapy;motor neuron disease;quality of life;occupational therapy treatment;medical equipment;palliative care;energy conservation techniques;
Type (COBISS): Bachelor thesis/paper
Study programme: 0
Thesis comment: Univ. v Ljubljani, Zdravstvena fak., Oddelek za delovno terapijo
Pages: 1 spletni vir (1 datoteka PDF (26 str., [11] str. pril.))
ID: 27322198