Položaj sorojencev v družni z otrokom z motnjo avtističnega spektra

Abstract

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Data

Language:	Slovenian
Year of publishing:	2012
Source:	Ljubljana
Typology:	2.11 - Undergraduate Thesis
Organization:	UL PEF - Faculty of Education
Publisher:	[J. Razpotnik]
UDC:	376.1:17.023.32(043.2)
COBISS:	9439305
Views:	835
Downloads:	151
Average score:	0 (0 votes)
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Secondary language:	English
Secondary title:	Siblings in family with child with autism spectrum disorder
Secondary abstract:	The very term "family with special needs" refers to a family, whose situation is specific, different and special. Within this family, the family members face with the family’s own common specialty. Usually it is this specialty which stands out the most and is the most talked about. Each member of the group takes this specialty and lives with it in his own way. In the field of autism spectrum disorder most of its attention has focused on a disorder, but less on the way how does society experience it. This thesis has focused on siblings of a child with autistic spectrum disorder. The theoretical part presents the theoretical knowledge dealing with family, families with special needs and autism spectrum disorders. The research work is based on analysis of the responses of five siblings of a child with autistic spectrum disorder. Using qualitative methodology, I conducted interviews with children, through which I learned how they experience their siblings with autistic spectrum disorder and realized the position these children have in the family. Purpose of the project is therefore to describe the position of siblings in the family with a child with autistic spectrum disorder. I focused on the relationships between siblings, parents and the environment and their role in the family. The way children cope with their siblings disorder depends on the personality of the child, family relationships and the environment. When facing with the disorder, siblings experience both negative and positive emotions. In the family sibling can take some responsibility in relation to the assistance and protection of the child with autistic spectrum disorder. Siblings’ wishes for the future are often indirectly related to their siblings with autistic spectrum disorder. Siblings do not express the desire for support self-help groups, but rather think of training workshops on autism spectrum disorders. Based on the perceived needs, I have, in this diploma work, formed a proposal of guidelines for the work of social pedagogue dealing with siblings of children with autism spectrum disorder.
Secondary keywords:	autism;sibling;family;avtizem;bratje in sestre;družina;
File type:	application/pdf
Type (COBISS):	Undergraduate thesis
Thesis comment:	Univ. Ljubljana, Pedagoška fak., Socialna pedagogika
Pages:	110 str., [26] str. pril.
Type (ePrints):	thesis
Title (ePrints):	Siblings in family with child with autism spectrum disorder
Keywords (ePrints):	družina s posebnimi potrebami
Keywords (ePrints, secondary language):	family with special needs
Abstract (ePrints):	Že sam izraz »družina s posebnimi potrebami« nakazuje, da gre za družino, katere položaj je specifičen, drugačen, poseben. To je družina, katere posamezniki se znotraj družinske skupnosti srečajo z njim lastno, skupno posebnostjo. Po navadi je ta njihova posebnost tista, ki najbolj izstopa, o kateri se največ govori. Člani skupine, vsak po svoje, to posebnost sprejmejo in z njo živijo. Na področju motenj avtističnega spektra je največ pozornosti usmerjene v samo motnjo, manj v to, kako motnjo doživlja okolica. Prav zato se pričujoča diplomska naloga usmerja v raziskovanje sorojencev otroka z motnjo avtističnega spektra. V teoretičnem delu so predstavljena teoretska izhodišča s področij družine, družin s posebnimi potrebami in motenj avtističnega spektra. Raziskovalno delo temelji na analizi odgovorov petih sorojencev otroka z motnjo avtističnega spektra. S pomočjo kvalitativne metodologije sem izvedla intervjuje s sorojenci, preko katerih sem dobila vpogled v njihovo doživljanje sorojenca z motnjo avtističnega spektra ter spoznala položaj, ki ga sorojenci zastopajo v družini. Namen naloge je torej opisati položaj sorojencev v družini z otrokom z motnjo avtističnega spektra. Osredotočila sem se na odnose med sorojenci, starši in okoljem ter njihovo vlogo v družini. Spoprijemanje z motnjo sorojenca je odvisno od osebnosti otroka, odnosov v družini in okolju. Sorojenci se ob soočanju z motnjo sorojenca spopadajo tako z negativnimi kot tudi s pozitivnimi čustvi. V družini lahko sorojenec prevzame določeno odgovornost v povezavi s pomočjo in varstvom otroka z motnjo avtističnega spektra. Želje sorojencev za prihodnost so pogosto posredno povezane s sorojencem z motnjo avtističnega spektra. Sorojenci ne izražajo želje po podpornih samopomočnih skupinah, ampak bolj željo po izobraževalnih delavnicah glede motnje avtističnega spektra. Glede na zaznane potrebe sem v nalogi oblikovala predlog smernic za delo socialnega pedagoga s sorojenci otrok z motnjo avtističnega spektra.
Abstract (ePrints, secondary language):	The very term "family with special needs" refers to a family, whose situation is specific, different and special. Within this family, the family members face with the family’s own common specialty. Usually it is this specialty which stands out the most and is the most talked about. Each member of the group takes this specialty and lives with it in his own way. In the field of autism spectrum disorder most of its attention has focused on a disorder, but less on the way how does society experience it. This thesis has focused on siblings of a child with autistic spectrum disorder. The theoretical part presents the theoretical knowledge dealing with family, families with special needs and autism spectrum disorders. The research work is based on analysis of the responses of five siblings of a child with autistic spectrum disorder. Using qualitative methodology, I conducted interviews with children, through which I learned how they experience their siblings with autistic spectrum disorder and realized the position these children have in the family. Purpose of the project is therefore to describe the position of siblings in the family with a child with autistic spectrum disorder. I focused on the relationships between siblings, parents and the environment and their role in the family. The way children cope with their siblings disorder depends on the personality of the child, family relationships and the environment. When facing with the disorder, siblings experience both negative and positive emotions. In the family sibling can take some responsibility in relation to the assistance and protection of the child with autistic spectrum disorder. Siblings’ wishes for the future are often indirectly related to their siblings with autistic spectrum disorder. Siblings do not express the desire for support self-help groups, but rather think of training workshops on autism spectrum disorders. Based on the perceived needs, I have, in this diploma work, formed a proposal of guidelines for the work of social pedagogue dealing with siblings of children with autism spectrum disorder.
Keywords (ePrints, secondary language):	family with special needs
ID:	8310868