diplomsko delo
Zala Fekonja (Avtor), Zorana Sicherl (Recenzent), Alenka Oven (Mentor)

Povzetek

Uvod: Parkinsonova bolezen je kronična, progresivna bolezen nevrodegenerativnega izvora, ki se najpogosteje pojavi pri osebah, starejših od 60 let. Bolezen nastopi, ko v možganih primanjkuje dopamina, katerega ključni pomen je skrb za spomin, gibanje in ostale pomembne funkcije. Najpogostejši simptomi bolezni so tremor, rigidnost, bradikineza, težave s položajno kontrolo in nedokončani vzorci giba. Vse to osebi otežuje oziroma onemogoča izvajanje vsakodnevnih aktivnosti in posledično zmanjšuje kakovost življenja. Namen: Ugotavljali smo, kako osebe Parkinsonovo boleznijo bolezen doživljajo, sprejemajo, se z njo soočajo in pri katerih vsakodnevnih aktivnostih jih le-ta najbolj ovira. Zanimalo nas je tudi kaj osebe tekom bolezni najbolj podpira in ovira ter ali so vključene v delovnoterapevtsko obravnavo. Metode dela: Izvedena je bila kvalitativna raziskava, v kateri smo podatke zbirali s poglobljenimi intervjuji s petimi osebami, ki imajo Parkinsonovo bolezen. Intervjuje smo z dovoljenjem udeležencev zvočno posneli, transkripte posnetkov pa analizirali s kvalitativno analizo. Rezultati: Udeležencem v raziskavi je Parkinsonova bolezen močno spremenila življenje, saj pomembno vpliva na izvajanje vsakodnevnih aktivnosti oziroma na kvaliteto njihovega življenja. Pri večini je pustila posledice na vseh področjih človekovega delovanja, tako pri skrbi zase, izvajanju širših dnevnih aktivnosti kot pri aktivnostih dela in prostega časa, vpliva pa tudi na njihovo vključevanje v družbo. Z boleznijo se soočajo tako, da jo jemljejo optimistično, se z njo navadijo živeti in prilagodijo aktivnosti svojim zmožnostim. Pri soočanju z boleznijo jim je v veliko pomoč družina in prijatelji, kot največji oviri pa izpostavljajo simptome bolezni in gibalno oviranost. Razprava in zaključek: Parkinsonovi bolezni se oseba zaradi stalnega napredovanja in spreminjanja celo življenje prilagaja in se z njo spoprijema. Od osebe lahko zahteva poseganje po uporabi pripomočkov, prilagoditvah ali celo opustitev prezahtevnih aktivnosti. Posledice bolezni so tudi mnoge ovire, ki jih osebe s Parkinsonovo boleznijo v veliki večini premagujejo s pomočjo družine, prijateljev, sodelavcev ter zdravstvenega osebja. Od začetne faze diagnoze ter v nadaljnjih fazah bolezni je pomembno tudi delo delovnega terapevta. Zaradi slabe prepoznavnosti stroke bi bilo potrebno več aktivnosti nameniti njeni promociji.

Ključne besede

diplomska dela;delovna terapija;nevrodegenerativna bolezen;učinek na vsakodnevno življenje;okupacije;

Podatki

Jezik: Slovenski jezik
Leto izida:
Tipologija: 2.11 - Diplomsko delo
Organizacija: UL ZF - Zdravstvena fakulteta
Založnik: [Z. Fekonja]
UDK: 615.851
COBISS: 46277379 Povezava se bo odprla v novem oknu
Št. ogledov: 549
Št. prenosov: 190
Ocena: 0 (0 glasov)
Metapodatki: JSON JSON-RDF JSON-LD TURTLE N-TRIPLES XML RDFA MICRODATA DC-XML DC-RDF RDF

Ostali podatki

Sekundarni jezik: Angleški jezik
Sekundarni naslov: Experiencing the disease and consequences in carrying out the everyday activities of people with Parkinson's disease
Sekundarni povzetek: Introduction: Parkinson's disease is a chronic, progressive disease of neurodegenerative origin that most commonly occurs with people over the age of 60. The disease occurs when the brain is deficient in dopamine, of which the key importance is the care of memory, movement and other important functions. Most common symptoms of the disease are tremor, rigidy, bradykinesia, position control problems and incomplete movement patterns. All this makes it difficult or impossible for a person to perform daily activities and consequently reduces the quality of life. Purpose: We determined how people experience Parkinson's disease, how they accept it, deal with it and in which activities it hinders the most. We were also interested in what supports and hinders people the most during their illness and whether they are included in occupational therapy treatment. Methods of work: A qualitative study was conducted in which data were collected through in-depth interviews with five people with Parkinson’s disease. Interviews were audio-recorded with the permission of the participants, and transcripts of the recordings were analyzed by qualitative analysis. Results: Parkinson's disease significantly changed the lives of the participants in the research, as it significantly affects the implementation of daily activities or the quality of their lives. For most, it has left consequences in all areas of human activity, both in self-care, the implementation of broader daily activities and in activities of work and leisure, and also affects their integration into society. They deal with the disease by taking it optimistically, getting used to living with it and adapting their activities to their abilities. Family and friends are very helpful in dealing with the disease, and the biggest obstacles are the symptoms of the disease and mobility impairment. Discussion and conclusion: Due to constant progression and change, a person adapts and copes with it throughout his life. It may require the person to resort to the use of devices, adjustments, or even to abandon overly demanding activities. Overcoming the disease also brings with it many obstacles, which the vast majority of people with Parkinson's disease overcome with the help of family, friends, co-workers and medical staff. From the initial stage of diagnosis and in the subsequent stages of the disease, the work of an occupational therapist is also important. Due to the poor recognition of the profession, more activities should be devoted to its promotion.
Sekundarne ključne besede: diploma theses;occupational therapy;neurodegenerative disease;effect on daily life;occupations;
Vrsta dela (COBISS): Diplomsko delo/naloga
Študijski program: 0
Konec prepovedi (OpenAIRE): 1970-01-01
Komentar na gradivo: Univ. v Ljubljani, Zdravstvena fak., Oddelek za delovno terapijo
Strani: 40 str., [3] str. pril.
ID: 12241503