Usmeritve za razvoj neformalne oskrbe ljudi z demenco

magistrsko delo

Povzetek

V teoretičnem delu magistrskega dela sem predstavila staranje prebivalstva v sodobni družbi, opredelitev dolgotrajne oskrbe v Sloveniji ter izvajalce oskrbe starih ljudi. V nadaljevanju sem opredelila pojem demence, predstavila epidemiološke podatke o razširjenosti demence, njene znake, vrste in vpliv, ki ga ima demenca na življenje človeka z demenco in njegove bližnje. Predstavila sem tudi oblike pomoči za neformalne oskrbovalce in vlogo socialnega dela na področju neformalne oskrbe ljudi z demenco. V raziskovalnem delu sem predstavila kvalitativno raziskavo, ki sem jo izvedla s štirinajstimi neformalnimi oskrbovalci ljudi z demenco iz različnih krajev v Sloveniji. V njej me je zanimalo kaj vse neformalni oskrbovalci ljudi z demenco doživljajo ob oskrbovanju, kaj potrebujejo za lažje oskrbovanje sorodnika z demenco in kakšen je njihov odnos do izobraževanj, ki so namenjena neformalnim oskrbovalcem. Razvoj tehnologije je omogočil številne tehnološke podporne storitve, zato me je v raziskavi zanimalo, kakšen je njihov odnos do tehnologije, ali so seznanjeni s tehnološkimi oblikami pomoči in ali jih uporabljajo; zanimalo me je tudi, ali bi bili pripravljeni na nove oblike pomoči preko spleta, ki bi jih razvili na podlagi njihovih izkazanih potreb. Ugotovitve kažejo, da je izkušnja oskrbovanja človeka z demenco v življenje oskrbovalca prinesla številne spremembe, tako pozitivne kot negativne. Pomemben dejavnik pri oskrbi človeka doma je, da ima neformalni oskrbovalec pri oskrbovanju pomoč. Želijo si, da bi bilo možno storitev pomoči na domu koristiti več ur/večkrat tedensko, želijo pa tudi finančno podporo, s katero si tako pomoč sploh lahko privoščijo. Če imajo neformalni oskrbovalci podporo družine in/ali prijateljev, ne čutijo potrebe po izobraževanjih in/ali predavanjih, podpornih skupinah. Neformalni oskrbovalci se na tehnologijo spoznajo, seznanjeni so z možnostmi tehnološke podpore za stare ljudi. Tehnološkim oblikam pomoči niso naklonjeni, saj jih je strah da bi tehnologija v kritičnem trenutku zatajila. Menijo, da bodo tehnološke oblike pomoči za neformalne oskrbovalce bolj uporabne za nove generacije oskrbovalcev, saj so že sedaj bolj vpeti in seznanjeni s tehnologijo. Na podlagi ugotovitev in sklepov sem predlagala vodenje registra s seznamom neformalnih oskrbovalcev, ki za človeka z demenco skrbijo sami, zagotovitev podpore tistim oskrbovalcem, ki so z vlogo oskrbovalca zaključili (zaradi smrti človeka z demenco, preselitve v dom za stare), pripravo skupnega portala (ali aplikacije) z relevantnimi informacijami s področja demence, ustanovitev prostorov za začasno bivanje ljudi z (napredovalo) demenco in mobilne enote strokovnjakov, ki bi na terenu svetovali ter sorodnike/oskrbovalce poučevale o oskrbi ljudi z demenco.

Ključne besede

dolgotrajna oskrba;stari ljudje;demenca;neformalni oskrbovalci;socialno delo;tehnologija;izobraževanje;podpora;

Podatki

Jezik:	Slovenski jezik
Leto izida:	2023
Tipologija:	2.09 - Magistrsko delo
Organizacija:	UL FSD - Fakulteta za socialno delo
Založnik:	[V. Husić]
UDK:	364.4:616.892.3
COBISS:	201772035
Št. ogledov:	1081
Št. prenosov:	47
Ocena:	0 (0 glasov)
Metapodatki:

Ostali podatki

Sekundarni jezik:	Angleški jezik
Sekundarni naslov:	Guidelines for the development of informal care for people with dementia
Sekundarni povzetek:	In the theory section of my master's thesis, I describe the issue of aging population in modern society, the definition of long-term care in Slovenia and the providers of care for older people. I continue by defining the term dementia, presenting the epidemiological data on the prevalence of dementia, the types of dementia and the impact of dementia on the lives of people with dementia and their loved ones. I also describe the forms of assistance available to informal caregivers and the role of social work in the informal care of people with dementia. In the research section I present a qualitative study I conducted that involved 14 informal caregivers of people with dementia from several different localities in Slovenia. In the study I looked at the informal caregivers' experiences when caring for people with dementia, what they need to make caring for a relative with dementia easier, and what their attitudes are towards training aimed at informal caregivers. Since technological development has facilitated a variety of technological support services, I also examined their attitudes towards technology, their familiarity with technological forms of assistance and whether they make use of them. I was also interested in whether they would be willing to try out new, online forms of assistance developed on the basis of their stated needs. The findings show that the experience of caring for a person with dementia changes the caregiver’s life in numerous ways, both positive and negative. The availability of help is an important factor for informal caregivers caring for a person at home. They would like the home help service to be available for more hours/several times a week, and they would like financial support so that they are able to afford it. The informal caregivers, so long as they have the support of family and/or friends, do not feel the need for training and lectures and support groups. The informal caregivers are familiar with technology and the possibilities of technological assistance for the older people. They have an unfavourable view of such technological forms of assistance, fearing the possibility of the technology failing at a critical moment. They feel that new generations of informal caregivers will be able to make better use of the technological forms of support, being already more immersed in the technology and more intimately familiar with it. Based on the findings and conclusions, I propose establishing a registry of informal caregivers who care for a person with dementia on their own, providing support to those whose caregiver role has concluded (because the person with dementia has either died or moved to a home for older people), the development of a common portal (or app) providing relevant dementia-related information and setting up temporary accommodation for people with (advanced) dementia, as well as a mobile unit providing relatives/caregivers advice and education in care of a person with dementia.
Sekundarne ključne besede:	long-term care;the older people;dementia;informal caregivers;social work;technology;education;support;
Vrsta dela (COBISS):	Magistrsko delo/naloga
Študijski program:	0
Konec prepovedi (OpenAIRE):	1970-01-01
Komentar na gradivo:	Univ. v Ljubljani, Fakulteta za socialno delo
Strani:	208 str.
ID:	22427628