magistrsko delo
Boštjana Bajc Kosem (Author), Damjana Kogovšek (Mentor), Jerneja Novšak Brce (Co-mentor)

Abstract

Magistrsko delo obravnava informiranost staršev otrok s posebnimi potrebami o storitvah pomoči in njihovih pravicah. Preveriti sem želela stanje v Sloveniji in morebitne razlike med starši glede na vrsto posebnih potreb otrok. Pri tem sem izhajala iz teoretičnih izhodišč, predstavljenih v prvem delu magistrskega dela. Reakcije staršev ob spoprijemanju z otrokovo drugačnostjo obravnavajo različni avtorji. Pri tem se razlage med seboj prekrivajo in dopolnjujejo. Pomembno vlogo odigra tudi način, kako je staršem novica o otrokovih posebnih potrebah posredovana. Predstavila sem potrebe staršev otrok s posebnimi potrebami, pri čemer sem posebno pozornost namenila potrebi po informacijah, ki se v literaturi izpostavlja kot ena najbolj izraženih potreb staršev. Ker otrokov razvoj poteka v interakciji z okoljem, ga je treba obravnavati znotraj konteksta, zato naj bo obravnava usmerjena v družino. Pomembno je sodelovanje med strokovnjaki in starši. Partnerski model je postal norma, saj zagotavlja največji napredek. Bistveni elementi partnerstva so sodelovanje, spoštovanje, zaupanje, skupni cilji, komplementarnost v znanju, dogovarjanje, komunikacija, iskrenost in fleksibilnost. Predstavila sem zgodnjo obravnavo, kot jo ureja Zakon o celostni zgodnji obravnavi otrok s posebnimi potrebami v predšolskem obdobju, ki je v slovenski prostor prinesel zakonsko ureditev procesa zgodnje obravnave. Sledijo še različne druge oblike pomoči in podpore za družine otrok s posebnimi potrebami, ki jih lahko razdelimo na neformalne (sorodniki, prijatelji itd.) in formalne (organizacije, zdravstvene institucije, strokovnjaki itd.) oblike podpore. Pomemben del magistrskega dela predstavlja tudi predstavitev pravic za družine otrok s posebnimi potrebami, ki jih razdelim v tri sklope: pravice s področja socialnega varstva, pravice, ki izhajajo iz osnovnega zdravstvenega zavarovanja, in pravice s področja vzgoje in izobraževanja. V empiričnem delu sem prikazala rezultate raziskave, ki je bila opravljena s pomočjo anketnega vprašalnika, ki je bil staršem posredovan v spletni obliki. Rešilo ga je 117 staršev otrok s posebnimi potrebami, starimi do 6 let. Rezultati kažejo, da ni bistvenih razlik med starši otrok, ki pripadajo različnim skupinam otrok s posebnimi potrebami. Vsi čutijo pomanjkanje informacij o pravicah in virih pomoči. Pri tem je komunikacije s strokovnimi delavci premalo, saj so informacije o storitvah pomoči starši od njih prejemali le redko. Za starše zato najpomembnejši vir informacij predstavlja internet. Prav vsi anketiranci so informacije o pravicah in storitvah pomoči iskali tudi na spletu. Starši poročajo tudi o odsotnosti psihološke in čustvene podpore zanje in nepovezanosti dela strokovnjakov. Pri ocenjevanju kvalitete odnosa se starši težko opredelijo do vprašanja, ali jih strokovni delavci obravnavajo kot enakovredne partnerje, kar kaže na to, da je prostora za izboljšanje odnosa na relaciji strokovnjak-starš še obilo. V zaključnem delu vprašalnika so starši navedli svoje predloge za izboljšanje sistema informiranosti. Na podlagi dobljenih informacij sem za strokovnjake, ki se pri svojem delu srečujejo s starši otrok s posebnimi potrebami, oblikovala smernice za delo z namenom izboljšanja njihovega sodelovanja s starši in dviga informacijske opolnomočenosti staršev.

Keywords

otrok s posebnimi potrebami;starševstvo;sistem pomoči;zgodnja obravnava;informiranost;

Data

Language: Slovenian
Year of publishing:
Typology: 2.09 - Master's Thesis
Organization: UL PEF - Faculty of Education
Publisher: [B. Bajc Kosem]
UDC: 376-055.52(043.2)
COBISS: 196734723 Link will open in a new window
Views: 38
Downloads: 7
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Other data

Secondary language: English
Secondary title: Information about assistance services and the rights of parents of children with special needs
Secondary abstract: The master's thesis deals with the area of parents awareness about support services and rights of children with special needs. I wanted to examine the situation in Slovenia and possible differences between parents according to the type of special needs of their children. In this I based my work on the theoretical background presented in the first part of the master's thesis. The reactions of parents when faced with their child's difference are discussed by various authors. The interpretations overlap and complement each other. The way in which the news of the child's special needs is communicated to the parents also plays an important role. I have presented the needs of parents of children with special needs, paying particular attention to the need for information, which is one of the most expressed needs of parents in the literature. As the child's development takes place in interaction with the environment, the child should be considered within the context and the treatment should be family-centred. Cooperation between professionals and parents is important. The partnership model has become the norm as it ensures the greatest progress. The essential elements of a partnership are: cooperation, respect, trust, common goals, complementarity in knowledge, agreement, communication, honesty and flexibility. I presented early treatment as regulated by the Act Regulating the Integrated Early Treatment of Preschool Children with Special Needs, which brought the legal regulation of the early treatment process into the Slovenian space. This is followed by various other forms of assistance and support for families of children with special needs, which can be divided into informal (relatives, friends, etc.) and formal (organisations, health institutions, professionals, etc.) forms of support. An important part of the master's thesis is the presentation of rights for families of children with special needs, which I divide into three sets: rights in the field of social protection, rights deriving from basic health insurance and rights in the field of education. In the empirical part, I present the results of the survey carried out by means of a questionnaire that was sent to parents in an online format. It was completed by 117 parents of children with special needs up to the age of 6. The results show that there are no significant differences between parents of children belonging to different groups of children with special needs. All of them feel a lack of information about rights and sources of help. There is a lack of communication with professionals, as parents rarely receive information about support services from them. The internet is therefore the most important source of information for parents. All respondents also searched online for information on rights and support services. Parents also report a lack of psychological and emotional support for them and a disconnection between the work of professionals. When assessing the quality of the relationship, parents find it difficult to address the question of whether professionals treat them as equal partners, suggesting that there is still room for improvement in the professional-parent relationship. In the final part of the questionnaire, parents gave their suggestions for improving the information system. On the basis of the information received, I have drawn up guidelines for professionals who work with parents of children with special needs, with a view to improving their cooperation with parents and raising parents' informational empowerment.
Secondary keywords: child with special needs;parenting;support system;early treatment;information.;Starši otrok s posebnimi potrebami;Univerzitetna in visokošolska dela;
Type (COBISS): Master's thesis/paper
Study programme: 0
Embargo end date (OpenAIRE): 1970-01-01
Thesis comment: Univ. v Ljubljani, Pedagoška fak., Specialna in rehabilitacijska pedagogika, Posebne razvojne in učne težave
Pages: 1 spletni vir (1 datoteka PDF (81 str.))
ID: 23769214