magistrsko delo
Katja Mavec (Avtor), Robert Cvetek (Mentor)

Povzetek

Spoprijemanje s sprejetjem novice, da ima otrok Downov sindrom, je težka preizkušnja za starše v življenju. Ti se morajo spoprijeti z veliko različnimi občutji in informacijami, ki jih dobijo ob diagnozi. V tem obdobju doživljajo veliko stisko, zato je še toliko pomembnejše, da imajo podporo partnerja, bližnjih sorodnikov in širše okolice. Namen magistrskega dela je razumeti doživljanje staršev ob prejetju novice, da ima njihov otrok Downov sindrom. Izvedena je bila kvalitativna raziskava, katere cilj je bil, da udeleženci opišejo svoja čustvena stanja in telesne senzacije, ki so jih občutili ob prejetju novice. Prav tako nas je zanimalo njihovo doživljanje podpore bližnje in širše okolice. V raziskavi smo uporabili fenomenološki pristop, prek katerega je bilo opravljenih šest intervjujev s šestimi različnimi pari staršev, ki imajo otroka z Downovim sindromom. Intervjuji so bili izvedeni med letoma 2019 in 2020. Poglobljen in usmerjen intervju je zajemal vprašanja, ki so se nanašala na naša področja raziskovanja, in sicer na časovni okvir prejetja novice, doživljajski vidik posameznika ob prejetju novice, doživljanje podpore bližnje in širše okolice, pomen in zadostnost podpore v dani situaciji, spremembo vlog v družinskem sistemu, doživljanje izkušnje zdaj in pogled na življenje skozi doživeto izkušnjo. Rezultati so pokazali, da lahko starši zelo različno doživljajo izkušnjo prejetja novice o Downovem sindromu. Nekateri lahko občutijo različna čustvena stanja in telesne odzive ob prejetju novice. Za starše je lahko zelo pomembna podpora bližnje in širše okolice, saj jim ti lahko dasta občutek moči, upanja, varnosti. Po določenem časovnem obdobju, ko starši sprejmejo diagnozo, pa se lahko pri njih pojavijo tudi pozitivna občutja. Takšna izkušnja lahko nekaterim družinam spremeni življenje, medsebojne odnose, vloge v družini in njihov pogled na življenje.

Ključne besede

Downov sindrom;spoprijemanje staršev z diagnozo;podpora;zgodnja obravnava;družina;

Podatki

Jezik: Slovenski jezik
Leto izida:
Tipologija: 2.09 - Magistrsko delo
Organizacija: UL TEOF - Teološka fakulteta
Založnik: [K. Mavec]
UDK: 159.942:616.899.6(043.2)
COBISS: 80322819 Povezava se bo odprla v novem oknu
Št. ogledov: 158
Št. prenosov: 25
Ocena: 0 (0 glasov)
Metapodatki: JSON JSON-RDF JSON-LD TURTLE N-TRIPLES XML RDFA MICRODATA DC-XML DC-RDF RDF

Ostali podatki

Sekundarni jezik: Angleški jezik
Sekundarni naslov: Parental experience after receiving information, that their child is diagnosed with down syndrome.
Sekundarni povzetek: For all parents is a difficult ordeal in their life when receiving the news that their child has Down syndrome. After a child is diagnosed, the parents are faced to deal with many various emotions and information's about it. During distress periods parents require the support of each other, close relatives, and the wider community. The purpose of the master's thesis is to understand the emotions of parents when receiving the news that their child has Down syndrome. Qualitative research has been carried out during which participant's emotional states and bodily sensations were described when they obtained the news. Their inner perception of the support from close relatives and the wider community was also included. A phenomenological psychological approach was used through six two-parent family interviews that have a child with Down syndrome. Interviews were conducted in years, 2019 and 2020. An in-depth, focused interview was referring to the area of research when getting the news, such as time frame, sensational aspect, experiencing support from the closer and wider community, the importance and adequacy of support in a given situation, changing roles in the family system and emotional experience through different time periods. The results have shown that parents might have a very a different way of the emotional experience when they were confronted with child diagnosis. Some might experience various emotional states and bodily responses. For parents, support of each other, close and wider community could be extremely important as it gives them strength, hope, and security. After a certain period of time, when parents accept their child's diagnosis, they might also experience positive feelings. Such an experience can change their lives, relationships, roles in the family, and their view on life.
Sekundarne ključne besede: Down syndrome;confrontation of parents with diagnosis;support;early treatment;family;
Vrsta dela (COBISS): Magistrsko delo/naloga
Študijski program: 0
Komentar na gradivo: Univ. v Ljubljani, Teološka fak.
Strani: VIII, 100, II str.
ID: 13587581