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Mapping challenges in the accessibility of treatment products for urea cycle disorders
Nina N. Stolwijk, Johannes Häberle, Hidde H. Huidekoper, Margreet A. E. M. Wagenmakers, Carla E. M. Hollak, Annet M. Bosch, Urh Grošelj
Izvirni znanstveni članek
Oznake: health care professional perspectives;nutritional therapies;treatment access;urea cycle disorders;medicinal products;
Current management guidelines for urea cycle disorders (UCDs) offer clear strategies, incorporating both authorized and non-authorized medicinal products (including intravenous formulations and products regulated as food). These varying product categories are subject to specific accessibility challe ...
Leto: 2025 Vir: Digitalni repozitorij raziskovalnih organizacij Slovenije
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