Prirojene srčne napake pri otroku

(diplomsko delo)

Špela Prislan (Avtor), Barbara Kegl (Mentor), Jernej Završnik (Komentor)

Povzetek

Teoretična izhodišča: Prirojene srčne napake se pojavljajo pri 0,8 % novorojenčkov. Na nastanek srčnih defektov vplivajo različni škodljivi dejavniki predvsem na začetku prve triade nosečnosti. Prirojene srčne napake vplivajo na kakovost življenja otroka ter njegove družine, zato ti potrebujejo podporo in razumevanje zdravstvenega in negovalnega tima. V empiričnem delu smo želeli ugotoviti, kakšna je vloga medicinske sestre pri obravnavi otroka s prirojenimi srčnimi napakami in koliko so starši informirani o bolezni svojega otroka. Raziskovalna metodologija: Empirični del diplomske naloge je temeljil na kvantitativni metodologiji raziskovanja. Anonimni anketni vprašalnik je vseboval 15 delno strukturiranih vprašanj. V raziskavi je sodelovalo 40 staršev otrok s prirojeno srčno napako. Raziskava je bila opravljena s pomočjo Društva srčnih otrok in spletnega anketnega vprašalnika, objavljenega na MedOver in Facebook strani Prirojene srčne napake. Podatke smo analizirali in grafično ponazorili s pomočjo programa Excel. Rezultati: Rezultati raziskave kažejo na to, da ljudje medicinsko sestro v 62,5 % dojemajo kot zdravstveno vzgojiteljico in osebo, ki je v 67,5 % pripravljena prisluhniti težavam, s katerimi se srečujejo družine med otrokovo boleznijo, manj pa smo uspešne s podajanjem informacij, ki jih otrok in njegova družina potrebujejo. Analiza raziskave kaže, da 42,5 % anketiranih meni, da medicinske sestre nimamo dovolj znanja o prirojenih srčnih napakah in prav tako, ozirajoč se na analizo raziskave, po mnenju 22,5 % sodelujočih v raziskavi meni, da otroku in njegovi družini v času bolezni vendarle ne nudimo dovolj pomoči, ki bi jo potrebovali. Sklep: Zdravstvena obravnava otroka s prirojeno srčno napako je izredno zahtevna za celoten negovalni in zdravstveni tim. Medicinske sestre v slovenskem prostoru bi morale imeti več strokovnega znanja in izkušenj na področju prirojenih srčnih napak pri otrocih, saj pomanjkanje le-tega v starših vzbuja dvom v našo vlogo v obravnavi njihovih bolnih otrok. Če bomo družini in njihovemu bolnemu otroku želeli zagotoviti kakovostno zdravstveno nego, bomo morali dokazati svoje znanje in promovirati naše delo in vlogo v zdravstvenem sistemu.

Ključne besede

družine;otroci;prirojene srčne napake;medicinske sestre;zdravstvena vzgoja;

Podatki

Jezik:	Slovenski jezik
Leto izida:	2013
Tipologija:	2.11 - Diplomsko delo
Organizacija:	UM FZV - Fakulteta za zdravstvene vede
Založnik:	[Š. Prislan]
UDK:	616.12-039-053.2(043.2)
COBISS:	1946532
Št. ogledov:	2848
Št. prenosov:	564
Ocena:	0 (0 glasov)
Metapodatki:

Ostali podatki

Sekundarni jezik:	Angleški jezik
Sekundarni naslov:	CONGENITAL HEART DEFECTS IN CHILDREN
Sekundarni povzetek:	Theoretical introduction (background): Congenital heart defects appear at 0,8% of the newborns. The formation of cardiac defects is affected by various adverse factors, especially at the beginning of the first triad of pregnancy. Congenital heart defects affect the quality of life of the children and his family. For this reason, they need support and understanding of the medical and nursing team. In the empiric part of the thesis, the purpose was to figure out the role of nurses in the health treatment with the children having heart disease and how the parents are informed about their children´s illness. Research methodology: The empiric part of the thesis based on the quantitative method of research. Anonymous questionnaire included 15 partially structured questions. In the research participated 40 parents of the children with children heart disease. Research was performed with the help of Društva srčnih otrok, on -line questionnaire was published on MedOver and Facebook page Prirojene srčne napake. Data were analysed and graphically illustrated in Excel sheet. Results: Results of the research show that people perceived nurse in 62,5 % as a health care teacher and the person who is in 67,5 % ready to listen to the problems of patients and their families during the treatment of ill children. On the other hand, nurses are less successfully with giving information that children and his family need. Analysis of research also shows, that 42,5 % of respondents believe, that nurses do not have enough knowledge about children heart diseases. By the review of the 22,5 % respondents, nurses do not offer enough help to the child and his family . Conclusion: Medical treatment of children with congenital heart disease is extremely challenging for the entire nursing and medical team. Nurses in Slovenia do not know enough about children heart diseases, following that, the parents have doubt about our role in the treatment of their sick children. If we would like to provide quality health care to a family and their sick child, we need to demonstrate our knowledge and promote our work and role in the health system.
Sekundarne ključne besede:	family;children;children heart disease;nurse;health education;
URN:	URN:SI:UM:
Vrsta dela (COBISS):	Diplomsko delo/naloga
Komentar na gradivo:	Univ. v Mariboru, Fak. za zdravstvene vede
Strani:	VIII, 77 f., 7 f. pril.
ID:	8726804